Sunday, May 24, 2009

Have Faith, Beleive in Modern Medicine, Postive Attitude

Some people call it Soul, Body, Mind. For me it is Faith, Medical, and Attitude. I believe in my faith and the faith of hundreds of others that have continually prayed for my healing. I believe in my medial team, Dr. Mosqueda, Dr. Dice and her staff, and appreciate AJ , my kids, my family and friends for keeping my positive attitude in check!~ My marrow shows no sign of myeloma cells, which technically means I am cancer free today! For me, I give all the glory of this amazing blessing to God.

Now we are on to the next path, stem cell/marrow transplant. My medical team will change to Dr. Charles F. LeMaistre and his staff from Texas Trans-plant Physician Group through the transplant process, but I have a feeling that Dr. Dice, my oncologist, will be close at hand! After all, I will return to her after the transplant for maintenance therapy.

Here is the low down on the transplant:

June 12, 13, 14, 15 Neupogen shots daily OPT (out patient clinic)
Neupogen shots are growth factors that encourage stem cell production. So the deal is, they are multiply my stem cells getting ready for the “harvest.”

June 16, 17 and 18 a “line” or sometimes called an IV catheter, will be put in placement and stem cell collection or “harvesting” begins.
This will be in a large vein in my neck because it releases so many cells in a rapid amount of time. This line also has an in and out port allows my blood to be withdrawn, have the stem cells spun out of it, and then return into my body. It isn’t painful, just boring! I will be in a lounger for 5 or so hours each day. I think I will pick up my crochet again!

June 19, 20 ,21 days off………… I suspect I will sleep a lot during this period!

June 22, 23 Melphalan Chemo Treatment
I will be admitted into the oncologist in-patient clinic and have two days (about 3 hours a day) of SERIOUS chemo! I will spend one or maybe two nights, unknown at this time.

June 24 TRANSPLANT!
They bring out my frozen stem cells, put them in a warm bath (not the microwave, like AJ thought) to defrost them…then via my port….put the CLEAN cells back into my blood. This works much like a blood transfusion. And then I go home!

June 25 – July 8 (13 days)

The chemo will kill everything~ red and white blood cells and all the platelets, which means my marrow will be destroyed, bringing my immune system to “0”. This sounds much scary than it really is. CAUTION is the key word. I will come home for the next 13 days after the transplant, but make daily visits to the clinic. I will be watch 24/7 and if there is any sign of infection, I will be checked into the in-patient clinic immediately for patient care. I have been told around day 4, 5, 6, and 7, I will feel really yucky! All fun stuff; nausea, extreme fatigue, possible mouth sores, etc……….but the UP SIDE is by July 4th the 10th day after transplant I should begin to feel like a human again. My marrow should be almost totally replaced by then. Is this not the most incredible thing? I am so lucky to have received this disease at this time because so much progress has been made in the last 5 years! It is a good time to have myeloma, IF you have to have it! Realistic recovery is 3 to 6 months. I am planning a great trip for the end of October….I will keep you guys posted!

I know this has been a long entry, but I wanted you guys to have a calendar so that you can keep your prayers going. We are only part of the way there. I do have a lot of local family for support. My sister, Linda, will be coming in during those critical 13 days, she and Martha will take turns watching me. I have all three kids and of course AJ and Pam! So know that I am truly taken care of. As you know scripture is food for me, so here is a wonderful desert!

Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. Philippians 4:6

11 comments:

  1. It is so good to hear of your positive progress!! Take care T!

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  2. Dawn Padgett ShenMay 25, 2009 at 1:27 PM

    I did not realize you were doing a transplant to yourself. That is awesome! My brother Richard had his own stem cells harvested from his marrow and put into his spine last November in Germany. I continue to pray for you. Love, Dawn Padgett Shen

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  3. Terry, we are loving your great news, your doctors sound fantastic... We are keeping you in our prayers and Aj and the kids as well. Love to you all. Rhea

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  4. That is great news about your bone marrow results! Sounds like you are in great hands! I hope that the rest of your journey goes smoothly and you continue to have good news to share.
    We continue to think of you and pray for you and your family,
    Allison & Ted Smith

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  5. Terry I just read your blog and iI am so thrilled for you. Stay strong, I pray for you daily and I know you can beat this. Tisa

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  6. We are still keeping the prayers coming from Waco. We keep up with you through Blake and Jess. You are an inspiration to anyone who has battled this disease!

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  7. Hi Terry,

    I am so excited about the great progress!! You are an inspiration to me as well as so many others. You will continually be in my prayers.

    Mary Kulow

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  8. Terry,
    I am so happy to hear the great news! I pray for you and your doctors daily. It sounds like you have a wonderful team of doctors. I hope to see you next week while I am visiting San Antonio.
    Blessings,
    Barbara

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  9. Terry,
    Elizabeth had a bone marrow transplant with her cancer. Her recovery was nothing short of miraculous. Her body said Welcome back to those cells and she was up and about in just a few weeks. I know and I am praying you will be better as quickly. Are you considering coming to the reunion in July? I hope you are sufficiently reovered by then. Love, Cousin Sandy Lee

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  10. The 'process' started yesterday and I thought about you several times. It was great to see you last weekend looking so vibrant! Our continued prayers for you all this month as you continue to fight to keep the cancer far, far away! June & Erik

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  11. You will be on my mind this month, I know that God is looking out for you, just as he did with my wife. I do remember some of the medicines that my wife found better than others, for the high doses of chemo that were nauseating... Zofran.....for the bone pain with neupogen... celebrex did ok before she ended up with narcotics .... she didn't like the dreams she had with some of her meds,,, then other meds were no problem at all.... You are in our prayers, and I know God is with you. Mike

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