I am getting ready for bed, but wanted to post something out there for my dear friends and family. The weekend at the lake was wonderful. It is so peaceful there and AJ and I get a lot of rest.
Monday, I did get the famous pedi-port. I have been a little sore, but that is typical. Tomorrow my port will “lose it’s flower!’, so to speak. They will use if for the first time and I am a little anxious. Although it is still covered with a bandage, I know that there is skin over the port. I have read that I should use numbing cream at least 1 hour ahead of time to stick the port, but I don’t have any! I am going to my appointment early in hopes that they will have the cream and apply it early enough that I am not going to feel the stick…or the “aching” afterwards that I heard about at to night’s support group.
Yes, SA has a myeloma support group. It meets the 2nd Wednesday of every month. AJ hosts and plays his regular poker game on Wednesdays so it is a perfect time for me to go. Keli was my driver and it proved very interesting for us both. Most of the people there were older than me, and the good news is that over ½ of the group was in remission, and the other ½ working towards it. I found out that pain in a forever part of the cancer, whether you are in remission or not. So I don’t feel so bad about popping the pain pills. And secondly, I learned that I have much more to learn. I will probably attend the group occasional, especially when there are specific guest speakers that will speak on topics I am interested in.
The BIG news is I met my “most likely” transplant doctor. The groups name is Texas Transplant Institute, and his name is C. Frederick “Fred” LeMaistre, M.D. http://www.texastransplant.org/ for those of you who are interested. He is amazing! He spent about 1 ½ hours explaining myeloma in layman’s terms and also went into dept about the transplant process. I will say this, it is not a easy task. I kind of was thinking it was just a surgery deal that wasn’t to comfy….but no….it is much more than that, but no need to get into all that now. I do have detailed questions and answers, and WHEN I can figure out how to attach a scanned document to the blog I will give it to those of you who are interested. It is a fascinating process.
I want to wish everyone a wonderful Easter/Passover! God is so good! I thank you all for the many, many cards I get everyday in the mail. So many have beautiful scriptures noted, I hope to journal these scriptures for all to read~ very inspirational! For tonight I will close with some very simple words that came on a card yesterday, “I’m praying that the God of miracles…overwhelms you with His incredible goodness.” He already has with all the prayers, well wishes and love sent by all of you.
“Praise be to the God and Father of our Lord Jesus Christ, the father of compassion and
the God of all comfort, who comforts us in all our troubles…2nd Corinthians 1:3,4 NIV
Wednesday, April 8, 2009
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Hi Terri! I am sure the port will be much more comfortable for you. I hope you all have a blesed Easter. I also read modeknitDOTcom everyday. It is a knitting blog and Annie Mosesitt's husband is fighting MM as well. Love, Dawn Padgett Shen
ReplyDeleteTerry,
ReplyDeleteHow did your Thursday appointment go? I am continuing to pray for you.
I plan to be in San Antonio most of the month of June and I hope that we will be able to spend some time together.
Do you know when your transplant is scheduled?
Thank you for posting on your blog. I am glad you found a support group.
God will place his healing hands on you to heal you.
Peace,
Barbara